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NeverMind the Mess…

the velveteen rabbit story
Milkweed

Milkweed

I apologize I’ve been absent I developed severe asthma in May and could not seem to heal. Obviously one would think that there MUST BE medications to help but in my case, there is nothing my body can tolerate. Naturally my doctor and I were becoming concerned as I grew weaker with more symptoms here, there and everywhere with no apparent cause. Finally in July I was again crying in his office and dimly recalled his mentioning to me something called “Mast Cells” and that it was the mast cells that were causing the original MCS that lead to asthma that lead to anaphylaxis, hypotension and fainting, migraines and terrible joint pain.

As you might imagine, I became quite depressed about what seemed to be completely outside my control nor responding to anything I tried. I am extremely sensitive to most medications, preferring vitamins and supplements, acupuncture and IV’s of magnesium, B, etc. In other words, I prefer holistic medicine tho, at this point, if I could find something my body could tolerate I would definitely give it a try!!!

photo of L'Adelaide

Me

One of the more difficult symptoms I have developed is cognitive “fog” tho it feels more like a complete impairment, like some of my brain cells simply went to sleep hopefully to wake up at some point. They are still napping….

So writing this post is difficult. I struggle to find the words to describe what is actually happening with this illness. I know there are some who are suffering with CFS, ME, MCS, fibromyalgia, arthritis and chronic pain syndromes…. actually the list is endless. I actually have Mast Cell Activation Syndrome-Disorder-Disease, depending upon what you read. I might add there really isn’t a true test for this illness to prove exactly what is wrong. On the bright side, researchers, doctors, hospitals and such are frantically researching this mysterious craziness that is having this disorder….

So I’m trying to at least share what I’m learning as time goes by. Since I’m mostly bed-bound at the present time, I am reading everything I can find on this illness. I suspect I’ve had it for years and the recent oral surgeries I had earlier in the year as well as jaw infections certainly didn’t help the breakdown of my immune system. Then I was exposed to pesticides and the usual sprays we use on the vineyard in spring, primarily sulphur.

Orb Weaver in Weeds at Dawn

Orb Weaver in Weeds at Dawn

4 thoughts on “Saga Continues and Becomes More Ridiculous

  1. Oh, darling, what a nightmare. My heart goes out to you. Take care. xx

  2. That sounds horrible. So sorry to hear it.

    1. L'Adelaide says:

      Thanks dear. I have good care but will be relieved when all the scopes and biopsies are done and I’m cleared of worse things. 😔

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